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Saturday, April 14, 2012

Paget's disease... a new kind of breast cancer

My friend Lina (thank you!) shared this important piece about a new kind of breast cancer.   

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Please forward to all of the women in your lives... Mothers, daughters, sisters, aunts, friends, etc.  

In November, a rare kind of breast cancer was   found. A lady developed a rash on her breast,  similar to that of young mothers who are  nursing.   

Because her mammogram had been clear, the doctor treated her with antibiotics for infections. After 2 rounds, it continued to get worse, so her doctor sent her for another mammogram. This time it showed a mass. 

A biopsy found a fast growing malignancy.  Chemo was started in order to shrink the growth; then a mastectomy was performed; then a full round of Chemo; then radiation.  After about 9 months of intense treatment, she was given a clean bill of health.  

She had one year of living each day to its
  fullest.  Then the cancer returned to the liver area. She took 4 treatments and decided that she wanted quality of life, not the after effects of Chemo.  She had 5 great months and she planned each detail of the final  days.  After a few days of needing morphine, she died.  She left this message to be delivered to women  everywhere:   

Women, PLEASE be alert to anything that is not normal, and be persistent in getting help as soon as possible.  
  

Paget's Disease
:  This is a rare form of breast cancer, and is on the outside of the breast, on the nipple and  aureole.  It appeared as a rash, which later became a  lesion with a crusty outer edge.  I would not have ever suspected it to be breast cancer but  it was. My nipple never seemed any different to  me, but the rash bothered me, so I went to the  doctor for that. Sometimes, it itched and was sore,  but other than that it didn't bother me.   It was just ugly and a nuisance, and could not be cleared up with all the creams  prescribed by  my doctor and dermatologist  for the dermatitis on my eyes just prior to this outbreak. They seemed a little concerned but did not warn me it could be cancerous.  

Now, I suspect not many women out there know a lesion or rash on the nipple or aureole can be
 breast cancer.   (Mine started out as a single red pimple on the aureole. One of the biggest  problems with  Paget's disease of the  nipple is that the  symptoms appear to be harmless. It is frequently thought to be a skin inflammation or infection, leading to unfortunate delays in detection and  care.)   

What are the symptoms?
 

1.   A persistent redness, oozing, and crusting  of  your nipple causing it to itch and burn.  (As I  stated, mine did not itch or burn  much, and had no oozing I was aware of,  but it did have a  crust along the outer edge on one side.) 

2.  A sore  on your nipple that will not heal. (Mine was on the aureole area with a whitish thick looking area in center of nipple).

3  Usually only one nipple is affected.  How is it diagnosed? Your doctor will do a physical exam and should  suggest having a mammogram of both breasts, done immediately.  Even though  the redness, oozing and crusting closely resemble  dermatitis (inflammation of the skin), your doctor should suspect cancer if the sore is only on one breast. Your doctor should order a biopsy  of your sore to confirm what is going on. 


This message should be taken seriously and passed on to as many of your relatives and  friends as possible; it could save someone's life. 

My breast cancer has spread and metastasized to my bones after receiving mega doses of chemotherapy, 28 treatments of radiation and taking Tamaxofin.  If this had been diagnosed as breast cancer in the beginning, perhaps it would not have spread.

TO ALL READERS
:

This is sad as women are not aware of Paget's disease. If, by passing this around on the e-mail, we can make others aware of it and its potential  danger, we are helping women everywhere. 

Please, if you can, take a moment to forward this message to as many people as possible, especially to your family and friends. It only takes a moment, yet the results could save a life.